Twins Blog: NICU Guilt

Twins Blog: NICU Guilt

I wake up every day in my own bed after a good seven hours of sleep. I eat my breakfast, and my day continues like usual. It’s work or it’s buying more baby gear or it’s on the couch with my wife picking our way through the DVR. I’m also at the hospital every day, visiting my children in the N.I.C.U., as they gain weight and prepare to come home after arriving more than two months prematurely.

But mostly, my routine is pretty normal. And I feel guilty about it. 

I think it’s mostly because I don’t feel like a father quite yet. I care like a father, and I worry like a father. I think about my kids all the time, and I want them home so bad that I’m actually really excited to begin putting together their bassinets (and I hate putting things together). But I haven’t experienced the 3 a.m. feedings or the zombie-like walk of someone who hasn’t slept in three weeks or the constant parental worry of, “What the hell am I doing?”

In some ways, I suppose, that’s good. I still get to sleep. Because my kids are still at the N.I.C.U., I don’t have to worry about them breathing 24 hours a day, seven days a week. I’m not up in the dead of night trying to keep myself awake as I press a bottle to my babies’ lips.

Yet, I feel guilty, because, while I’m home and sleeping in comfortable surroundings, my twins still aren’t. They share a crib that wasn’t built out of my love for them. They’re wrapped in the hospital’s blankets, not the ones my mother-in-law has knitted especially for them. They’re still hooked up to the tubes and wires that measure their breathing and their oxygen saturation. They’re not suckling at my wife’s breast; they’re still fed through a tube that runs from their nose into their stomach. 

They just celebrated their one-month birthday, but we didn’t get to hold them in our arms and whisper happy birthday all night long. My kids were in the hospital, while, five miles away, my wife and I ate cupcakes in celebration. 

In reality, we know we’re the lucky ones. The twins are still learning how to eat and breath at the same time, and because – we constantly remind ourselves of this – they were born almost 10 weeks before we were ready for them, their little bodies are still developing. Our kids are growing, and growing pretty quickly.

In the N.I.C.U., that’s one of the best possible outcomes. You might remember that I told the story of the baby across the aisle from our kids’ crib. She was a 27-weeker who weighed little more than a pound. She did well at first and then suffered a setback, and the parents gathered their families because they thought the end was near. Then, the baby recovered and seemed on the right path. Then, all of a sudden, the baby was transferred across town to another N.I.C.U. where the really sick babies go. 

We likely won’t see them again, and we likely won’t know their baby girls’ outcome.
So, yeah, we’re lucky that Stella and Noah continue to progress and progress well.
Never was that more evident when I caught a cold and had to stay away from their bedside for four days. By the time I returned, their faces noticeably were thicker, their cheeks noticeably fuller, their heads noticeably bigger. 

We’re hoping they can come home in three weeks. We’re hoping they’ll have worked through their breathing issues and they’ll be taken off their caffeine and they’ll have surpassed the five-pound barrier. 

I’m ready for the long, sleepless nights. I’m ready for the constant spit-ups and the dozens of daily diaper changes. I’m ready to hold them close to me in the morning, and I’m ready to kiss their bellies at night. 

I’m ready to feel like a father. Because so far, I feel like a stranger.

Josh Katzowitz lives in Atlanta and covers the NFL for CBSSports.com. He is a featured contributor to ManoftheHouse.com and author of the book, Bearcats Rising. He's currently working on a book about pro football that is scheduled to be released in 2012. 

Comments (9):

C R. If you think you feel guilty now, wait and see what happens if one of your twins is sent home and the other needs to stay. My first boy came home after about 2 weeks, the second remained for another month. Holding one at night knowing the other was still in the hospital really sucked!!! I hope all goes well with your twins. - 04/11/2011
Natasha R. My daughter was in the NICU for two months. I felt the same feelings of guilt and parental detachment. I never felt like a mom. Even though I was spending the entire day at her side, I still never felt like a parent. Just a spectator. I think it really warped the bonding process and I wish someone had warned me of that. I believe that NICUs should have therapists on standby to help parents cope and better bond with their children. I agree with Coleman M's statement that taking her home was the best day ever. Feeling like "wow...she's finally mine! I finally get to be a real mom now!". Soon you'll be so caught up in being a parent that this moment in time of separation will be just a distant memory. You might not get the long sleepless nights though. I was told to be thankful that my daughter was sleeping through the night by the time I brought her home. But I still kinda feel like I missed out on a lot of first time parent experiences. Best of luck to you and your little ones. - 04/09/2011
Traci G. What beautiful writing and sentiment. I'm sure that now that your babies are home your NICU guilt has been replaced by utter exhaustion. My twin nieces were born at a little more than 26 weeks some 12 years ago. They are beautiful and healthy 12 year olds now. But the entire family will never forget the range of emotions...joy, despair, hopelessness, delight, guilt, sorrow, happiness, elation, worry, peace...that comes with premies. And there is survivors guilt, too, when others' babies don't survive. God bless you and your family as you experience those same emotions all your life as a parent! - 04/09/2011
Jessica G. I'm sitting in a NICU right now with my husband, with our premature twins, Mira and Grayson. We just finished reading your article. It's nice to hear that we're not the only ones who feel like this. Thank you and we wish your family well. - 03/27/2011
Jenna W. We had twins that were 8 weeks premature. However, only one went to the NICU, and stayed for two weeks while the other went right home. We still feel guilty for not being able to feed and cuddle and love the other while we were home doing just that with his twin. I don't think we will ever stop wondering what life would have been like for the twin in the NICU if he had been home with his family being loved and not alone in an incubator with tubes and IV's all over him. He wasn't in a crib with his twin, which is what the nurses said is easier on preemies. We will always wonder and feel so guilty. - 02/07/2011
Erich B. My daughter was born full term but had trouble staying warm and obtaining fluids. She was in the nursery for 8 hours but it felt like an eternity. Glad to hear you little ones are home and healthy. - 01/15/2011
Jeff P.
Jeff P. @Coleman ... thanks for sharing. I can't begin to imagine the feeling that rushed over you when you got to take him home. Glad to hear things are going well for you and your family. @T M ... that is great point about the educational tutoring you were able to get from the NICU staff. I've tried to imagine how I would be in that situation, and if I ever am, I will certainly keep that perspective in mind. - 11/18/2010
T M. As a father of happy and healthy 15 month old triplets, I can tell you that the Coleman M. comment that the "greatest day ever" was walking out the doors of the hospital with them, is more than correct. Must also admit slightly that the NICU stay was also a little welcomed. The care and educational tutoring provided by the most professional and compassionate nurses helped ease my trepidation in handling a child as small as 2.5 pounds. Now that time has raced through a year, and the toddlers race as fast around the house, the game continues to change and marvel. Enjoy every minute of your blessing as it passes quickly (and drags on some nights ;). - 11/16/2010
Coleman M. The stint in the NICU was probably one of the hardest things I've ever had to go through. My son had brain and back surgery hours after he was born and spent 31 days in the NICU recovering. Not being able to hold my son, the feeding tube, the constant threat of another surgery... terrible. I just felt helpless. Then there's the strange feeling of walking out the doors of the hospital with him. This is mine now? I don't have to give him back? Greatest day ever! I understand. Know that it's only temporary. Soon those feelings of unknowing, helplessness, guilt, and yearning will be gone. I look forward to reading about your trip home soon! - 11/16/2010

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